I spent over two hours on conference calls* today. Two separate meetings – one with school staff (ETR meeting) and one with the treatment team(psychiatric and dorm staff). Both calls included a couple of social workers who drove three hours from our county to attend in person. (My daughter has the best social workers!)
Two hours of reviewing IQ test scores and scores regarding the severity of her autism – all with full explanations of each item. Reviews of mental health diagnoses. Observations of teachers and staff . All of this reinforces what I already know about my daughter’s behaviors, deficits and abilities.
Is it helpful?
Having these meetings and the very detailed results in her records will help determine the services that are available to her as an adult. Definitely helpful.
Hearing the difficulties that highly trained staff have with my daughter makes me feel like I am not a crazy woman or incompetent mother. Sad, and maybe selfish, but helpful.
Hearing about her good days makes me happy, and miss her very much. Hearing about the bad days makes me very grateful for her residential school setting. Both helpful, but heartbreaking.
Tomorrow – two more meetings, this time in person, here in our home county. I trust those meetings will be helpful, too.
*I don’t attend these meetings in person because my daughter does not attend the meetings – if I am going to drive the three hours to her school, I want to spend time with my daughter, not staff!